Vendors, Contacts, Info

Illinois Clinic Information  To get address, phone numbers and clinic staff information for all Illinois PKU & AHD Clinics. CHM Diet Record Forms: PKU Diet Record | Electronic Diet Record

LP Food ListVirginia Schutte’s 3rd Edition Low Protein Food List for PKU is now available! Get Address, phone numbers,and staff information for all Illinois PKU & AHD Clinics. For information on the book and a bit more information: Food List Announcement

Check out the links below for low protein food sites, support and resources. Be sure to come to our annual meeting where we always have vendors available to try new PKU foods and formulas.

Abbott Nutrition

Applied Nurtition



Cycle Vita

Dietary Specialties

Lil’s Dietary Shop




Patient Power

Phase 3 

PKU News

PKU Perspectives


Taste Connection

USDA Food Nutrition Data Sheet

IDPH & Formulary

David Schlosser is the PKU & AHD contact at IDPH. Contact David regarding your pin number to order. You will need to provide David the patients name and birthdate. Order forms are below, they can be mailed or faxed. David can be reached at (217) 557-5395. Orders are placed on Monday. If formula is in stock, orders recieved by Monday will arrive by Friday.
For more information about IDPH:

How to join:

PKU Listserv: PKU ListServ Information

Maternal PKU group:  Click here for information . You will need a Yahoo account to join and then give a brief descrition of yourself to join.

Additional Information
Here are some downloadable reference pages that provide good information for friends, teachers and family.