Arizona

Arizona PKU and Allied Disorders Network
Email PKUsupport@msn.com

California

California Coalition for PKU and Allied Disorders
www.pkuparents.org
Email pkusocal@keyway.net

Children’s PKU Network
www.pkunetwork.org
Email pkunetwork@aol.com

Delaware

Delaware Chapter of Mid-Atlantic Connection for PKU and Allied Disorders, Inc
info@MACPAD.org

Florida

Unified To Support Metabolic Disoorders (covers Florida, Texas and Missouri)
www.usmd-pku.org

Illinois

PKU Organization of Illinois
www.pkuil.org
Email info@pkuil.org

Indiana

Indiana PKU and Allied Disorders Association
ww.indianapku.org
Email fundraising@indianapku.org

Michigan

Michigan PKU & Associated Disorders, Inc.
www.michigan-pku.org

Mid-Atlantic

Region Mid-Atlantic Connection for PKU and Allied Disorders, Inc.
www.macpad.org
Email info@macpad

Minnesota

Univ of Minnesota PKU Progam and PKU Foundation
/www.peds.umn.edu/pku/

National

National PKU News
www.pkunews.org/

New England

New England Connection for PKU and Allied Disorders
www.NecPad.org

Tennessee

Tennessee PKU Foundation
www.tennesseepku.org

Washington

Univ. of Washington PKU Clinic
http://depts.washington.edu/pku/

Wisconsin

PKU And Allied Disorders of Wisconsin (PADOW)
www.padow.org

Around the World:

Australia PKU Association of N.S.W, Inc, Sidney, Australia
www.pkunsw.org.au/

European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria http://www.ping.be/espku

Netherlands PKU Online (includes PKU Diet program)
http://www.wtb.tue.nl/woc/ptc/vanesch/pku/index_eng.html

United Kingdom National Society for Phenylketonuria http://www.nspku.org/

PKU World www.pkuworld.com

www.lowproteinliving.co.uk

Resources which provide information
on treatments and KUVAN

www.pku.com

www.kuvan.com

Other Links

Maternal PKU http://health.groups.yahoo.com/group/maternalpku/ A support group for Maternal PKU, Stephanie Coleman CPKU.

PKU Adult/Teen
Email pkuadult@aol.com

PKU World Link www.pkuworldlink.org The simple aim of the website is to help link people with PKU worldwide.

Community Websites

Community website dedicated to providing information and resources to sufferers of PKU and other metabolic conditions.

SHS-Nutrition, Low protein living http://www.shs-nutrition.com/lowproteinliving/

SHS-International Nutritions, http://www.shs-nutrition.com/lowproteinliving/consumer-information-centre/phenyketonuria-PKU In this section you can find out more about their range of amino acid substitutes and low protein foods.

Facebook http://www.facebook.com/group.php?gid=8573813158