The PKU Organization of Illinois. Serving the PKU and Allied Disorders Community.

The PKU Organization of Illinois was formed in 1969 by parents and medical staff from the PKU community hoping to be a resource to other families with PKU. This is still the case today. In addition to PKU families, we support teens, adults and those who have left diet who hope to return.

In addition to PKU, we support 16 Allied Disorders.

Latest News and Events


Family Camp is almost here!

Family Camp is back!!  Get ready for a great weekend of camping, outdoor activities, campfires and yummy food!  details below, ...
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2018 Family Fund Day

Register now for Family Fund Day and Save!

Family Fund Day is coming up, and the early registration ends 5/30. Take some time over the holiday weekend to ...
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2018 BioMarin event in Westchester

Event this week – PKU on the Go!

BioMarin is hosting an event "PKU on the Go" in Westchester this Wednesday. Schedule a 15 minute time slot by ...
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