Welcome to the

PKU Organization of Illinois

and Allied Disorders

Fall is here!

Fall is here! With that comes a busy season for the PKU Organization of IL. Then we head to October with our main fundraiser of the Wine Tasting and Silent Auction on Oct. 4th. We finish with a bang Nov. 8th for our annual meeting at Skokie's Holiday Inn. We look forward to seeing many of you at these events! Enjoy the fall.

Check Events Page for all dates and locations of events this year!




PKU BinderMy PKU Binder

My PKU Binder is a comprehensive manual on effectively managing PKU on a daily basis. These materials include the newest and best thinking on PKU and offer hundreds of tips, advice and what to expect from birth to adulthood both practically and emotionally. The National PKU Alliance hopes My PKU Binder will help you understand more about PKU, what to expect at different stages in life, and where to turn for support and help. The NPKUA would like to thank the following companies and people for their generosity and expertise on this project. Without their support, the PKU Binder would not have been possible:

  • BioMarin Pharmaceuticals — for supporting My PKU Binder with an educational grant
  • Applied Nutrition — for use of My PKU Toolkit A Transition Guide to Adult PKU Management. New Jersey: Applied Nutrition Corp. 2007 in several of the chapters
  • Australian Society for Inborn Errors of Metabolism — for use of their PKU Handbook in several of the chapters
  • Children’s Memorial Hospital Chicago — for their edits, contributions and medical review of the information in the handbook

Click the image above or here for the full Binder (8MB). To get chapter by chapter downloads click this link to visit the NPKUA website.



The PKU Organization of Illinois is a member of the NPKUA. Click here to find out more information about the National PKU Alliance and how you can become a member.

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To learn more about the 2011 Research Grants click here.

IllinoisInformation about Illinois PKU & AHD clinic and formulary information can be found here:

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PKU Press

PKU PressClick the logo to get access to the most current & achieved PKU Presses. The PKU Press is published twice a year by the PKU Organization of Illinois. Click here if you would like to be added to our mailing list or to update your mailing address.

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