BioMarin is hosting an event “PKU on the Go” in Westchester this Wednesday. Schedule a 15 minute time slot by calling Jennifer Lyman at (415) 612-7989 or emailing her at firstname.lastname@example.org. For more information, see the event page.
Recipes, PKU-friendly restaurants, grocery store finds, a full list of our 2018 events, and more!
New Parent cafe kicks off our 2018 event season. this is a free event at a great venue for families. Come and meet families who have kids with PKU. Meet vendors, try new Lo Pro foods, talk to people who know what you’re going through, and bring home some swag! This is a no charge event open to everyone. We hope to see you there!!
Updated on 4/19/2018:
Due to the amazing amount of interest, we have closed the registration for this event. Sorry for any inconvenience.
BioMarin will be hosting “What’s New in PKU Care” at historic Wrigley Field on April 7th, starting at 10am. Go to the event’s page for more information: http://www.pkuil.org/event/2018-whats-new-in-pku-care-wrigley-field/
After the “What’s new in PKU Care”, consider heading over to the Four Shadows Tavern & Grill for a NPKUA fundraiser: http://www.pkuil.org/event/2018-pku-fundraiser-for-npkua/
It is with a heavy heart today we’re writing to inform you Hazel Vespa’s husband, Carl, passed away last night. Hazel has been a prominent advocate for our community since the group’s inception and we all mourn her loss. She asked us to let the Illinois PKU community know that they are welcome to attend the funeral and visitation following the service on Sunday at 2:00 P.M. at St. Paul’s United Church of Christ church in Lincoln Park. More details as we receive them.