Join us in May as we lobby on Capitol Hill!
We are pleased to invite you to lobby with us on May 18 and 19, 2015 for the Medical Foods Equity Act (MFEA) in Washington, D.C.! The MFEA would require all federal programs to cover the cost of medical foods (both formula and food modified to be low in protein) for children and adults with PKU and other inborn errors of metabolism.
The lobbying will take place on both Monday, May 18 and Tuesday, May 19. Volunteers will be paired with seasoned advocates for the lobbying appointments. If you can’t make it to D.C. in May, you can still help us by securing appointments for the NPKUA with your member of Congress. If you are interested in joining our efforts in D.C. or making an appointment for the NPKUA volunteers, please contact Amy Oliver at firstname.lastname@example.org for more information and materials.
Information is also available on the NPKUA website – click here.
Thank you for your help in advocating for the MFEA! Together we can make our voices heard!
The National PKU Alliance