Our very own Ruthie Jäger is going to make a special guest appearance as the recently crowned Miss Illinois at the Cosley Zoo Family Fund Day!
Just a quick reminder…
One week to provide us with your much needed feedback!
If you haven’t already, please help us plan the 2016 conference by taking a brief survey on what you would like to experience at the next National PKU Alliance in Indianapolis, IN. The survey will be closed at 11:00 pm CST on Wednesday, April 15, 2015.
Thank you for your participation! We truly value your feedback!
National PKU Alliance
National PKU Alliance, Inc. | P.O. Box 501 | Tomahawk, WI 54487
firstname.lastname@example.org | http://www.npkua.org
You can also Right-Click on the link and “Save Link as” or “Save Target as” to download the PKU Press to your PC instead of viewing it online.
Join us in May as we lobby on Capitol Hill!
We are pleased to invite you to lobby with us on May 18 and 19, 2015 for the Medical Foods Equity Act (MFEA) in Washington, D.C.! The MFEA would require all federal programs to cover the cost of medical foods (both formula and food modified to be low in protein) for children and adults with PKU and other inborn errors of metabolism.
The lobbying will take place on both Monday, May 18 and Tuesday, May 19. Volunteers will be paired with seasoned advocates for the lobbying appointments. If you can’t make it to D.C. in May, you can still help us by securing appointments for the NPKUA with your member of Congress. If you are interested in joining our efforts in D.C. or making an appointment for the NPKUA volunteers, please contact Amy Oliver at email@example.com for more information and materials.
Information is also available on the NPKUA website – click here.
Thank you for your help in advocating for the MFEA! Together we can make our voices heard!
The National PKU Alliance
Also see the events section to the right for more events.
Join Chef Andy Broder for a day of of hands-on cooking the low-protein way!
You will take away useful cooking and nutritional tips, as well as a variety of easy and delicious recipes for all members of your family to enjoy. At the end of the event, enjoy the food prepared that evening!
Hear Kendra Bjoraker, PhD, of 3:1 Neuropsychology Consultants, speak about “PKU, Phe Levels, and the Brain.”
Learn about “Daily Treatment with KUVAN® (sapropterin dihydrochloride) Tablets for Oral Use or Powder for Oral Solution.”
Come join us for fun on the farm at Cosley Zoo!