Once again, this year our panel will focus on different perspectives of patients throughout various age groups and backgrounds.
Grant Smith, PKU IL - Vice President
Patients or Caregivers:
Meredith Stutzman - Mother to two young PKU boys
Alex Davis - Middle school student
Elena Caro - Pediatric Registered Nurse - Young adult PKU patient
Sean Haney - Young adult PKU patient
Soo Shim, Lurie Children’s, Social Worker
Afternoon Breakout Sessions:
Breakout sessions are designed to be inclusive of all metabolic diets. We hope that there is enough variety in all the sessions that everyone can find something they will enjoy!
Topic 1: Athletics and Metabolic Diets:
Clinic Leaders: Katie Ingle & Krista Engen, Metabolic RDs at UIC
Patient Leader: Sarah Marshall
Description: In this session, we will discuss the importance of proper nutrition and the role it plays in metabolic patients while participating in various athletic activities. Advice on how to properly train will also be given.
Topic 2: Best Dietary Practices
Clinic Leaders: Katie Arduini & Heather Bausell,
Metabolic RD at Lurie Children’s
Patient Leader: TBD
Description: We will discuss of how to track phe/protein intake, where to find the best low protein foods in the grocery stores and optimizing formula intake.
Topic 3: What to Expect: The Early Years
Clinic Leaders: Amanda Johnson, Metabolic RD at Lurie Children's
Shannon O'Brien, Metabolic RD at UIC
Patient Leader: Melinda Halverson & Joanna Forberg
Description: We will focus on the different methods for introducing and tracking solid foods, FAQ’s about the first few years with PKU, and opportunities to discuss/network with other families on the in’s and out’s of living with and adjusting to PKU