The Organization/Board Members

Officers

The officer positions are President, Vice President,  Secretary, and Treasurer. 

All officers attend all board and special meetings and assist in the organization and planning of the annual meeting.

Officers and Board Position Descriptions

Board of Directors

The board of directors consists of eleven voting members in addition to non-voting honorary and ex officio members. Once the members of the organization elect the board, the board will then elect four officers (President, Vice President, Treasurer and Secretary) at the first board meeting. Board members are elected to a two-year term, with a limit of three consecutive terms. Officers are limited to serving only two consecutive terms in the position.

 Committees

Committee

Committee Objective

Legislative Work through state and local politicians to achieve mandatory insurance coverage of foods and formulas
Annual Meeting Plan and conduct the annual meeting
Hospitality Plan social events (coffees, picnics, camps, cookie exchanges, etc.) and assist in new member orientation upon diagnosis
Fundraising Plan and conduct fundraising events (raffle, shop-n-share, product sales, etc.) and coordinate fundraising appeals to members and donors
Communications Publish PKU Press, Parent Directory, brochure, maintain internet site, and coordinate other communications to organization members
Education Monitor, gather and disseminate information to members dealing with PKU, coordinate educational activities, handle maternal PKU related matters, and monitor PKU related research efforts
Legal Ensure organization complies with legal and tax requirements, maintains insurance coverage, and protects member's interests in health care and insurance legislation
Nominating Present the slate of directors to the Voting Members of the Organization for election. Voting members of the Organization are all individuals in the state with PKU over the age of 16 and all members of their immediate families over the age of 16.

2006 Meeting Information

Date

Time Agenda Summary
January 12 6:30 pm Agenda Summary
Feb 23 6:30 pm Agenda Summary
April 6 6:30 pm Agenda Summary
May 18 6:30 pm Agenda Summary
June 22 6:30 pm Agenda Summary
July 20 6:30 pm Agenda Summary
September 24 6:30 pm Agenda Summary
October 5 6:30 pm Agenda Summary

2005 Meeting Information

Date

Time Agenda Summary
May 12 6:30 pm Agenda Summary
June 30 6:30 pm Agenda Summary
July 27 6:30 pm Agenda Summary
September 8 6:30 pm Agenda Summary
October 20 6:30 pm Agenda Summary

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Last modified: August 09, 2006