| National PKU News | National PKU News Web Site |
| Illinois | PKU Organization of Illinois Web Site |
| Michigan | Michigan PKU |
| Wisconsin | PKU News from Wisconsin |
| California | PKU Parents of California |
| Mid-Atlantic | Mid-Atlantic Connection for PKU and Allied Disorders |
| Florida | PKU of Florida |
| Mississippi | PKU Mississippi |
| National Coalition (USA) | National Coalition for PKU & Allied Disorders |
| CPN | Children's PKU Network |
| PKU World Link | PKU World Link |
| NSPKU - United Kingdom | National Society for Phenylketonuria - United Kingdom |
| E.S.PKU - Europe | European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria |
| PKU Exchange | England PKU Exchange |
| PKUBOARD | PKUBOARD, Austria |
| Netherlands | Netherlands PKU Online. Includes PKU Diet Program |
| Wisconsin,
U of, Waisman Center |
The Waisman Center at the University of Wisconsin-Madison |
| Washington, University of | University of Washington PKU Clinic |
| Texas, Dept.of Health | Texas Department of Health PKU |
| Minnesota, University of | University of Minnesota PKU Program and PKU Foundation |
| Adult Listserv | PKU Adult and Teen Listserv |
| PKU CORPS | Childrens Hospital Boston PKU CORPS |
| March of Dimes | March of Dimes PKU Fact Sheet |
| Centre for Rare Disorders | Centre for Rare Disorders - Norway - PKU Information www.rh.uio.no/ssss/English/Disorder/ED_pku.htm |
| GLaRGG | Great Lakes Regional Genetics Group |
| Arc of the US | The Arc of the United States |
| Genes/Health | PKU - Your Genes, Your Health |
| Applied Nutrition | Applied Nutrition Corporation |
| Cambrooke Foods | Cambrooke Foods |
| Dietary Shoppe | Dietary Shoppe,Inc. |
| Dietary Specialties | Dietary Specialties - MenuDirect Corp. |
| Ener-G Foods | Ener-G Foods |
| Lil's Dietary Specialty Shop | Lil's Dietary Specialty Shop |
| Mead Johnson | Mead Johnson |
| Med-Diet | Med-Diet |
| Rich Products | Rich Products |
| Ross Products Division | Ross Products Division, Abbott Laboratories |
| SHS | Scientific Hospital Supplies North America |
| Specialty Diets, Inc | Specialty Diets, Inc. |
| National
Institute of Health Office of Rare Diseases |
National Institute of Health Office of Rare Diseases |
| Genetic Science Learning Center | Genetic Science Learning Center - University of Utah |
| National
Institute of Health - CRISP Database |
Retrieval of Information of Scientific Projects |
| HHMI Research on Hereditary Diseases | Howard Hughs Medical Institute - Blazing a Genetic Trail |
| New England Journal of Medicine | New England Journal of Medicine Online |
| PAH Mutations Database | McGill - Phenylalanine Hydroxylase Locus Database Home Page |
| Rare Genetic Diseases in Children | An Internet jump-station to sources of information on rare genetic diseases affecting children. |
| NORD | National Organization for Rare Disorders, Inc |
| US National Library of Medicine | United States National Library of Medicine - searchable databases & databanks |
| Neuropsychology Central | Neuropsycholoby Central - Resources & Forum |
| The Gene Letter | The Gene Letter informs the public and professionals about advances in genetics |
| NCBI | Online Mendelian Inheritance in Man. Catalog of human genes and genetic disorders |
| Cochrane CF & Genetic Disorders | Cochrane Cyctic Fibrosis & Genetic Disorders Group |
| Inborn Errors of the Newborn | Tyler for Life Foundation - Newborn Screening |
| 'The Miracle of Bryan Pearce' (book) | biography by C. J. Stevens (a young artist's triumph in spite of PKU.) http://www.johnwade.com/bryanpearce.htm toll-free at 1-888-211-1381 Paperback $12.00, Hardcover $20.00 wadecjs@yahoo.com |
| Cookbook | Cathy Lorimer's PKU Low-Protein Cuisine Online |
| PKULife | PKU low protein diet management software |
| Damon's PKU Web | Damon's PKU Web Site |
| Nutrition Facts Analyzer
|
Generates nutrition facts labels and provides simplified nutritional analyses for all foods and recipes |
| USDA Nutrient Data Base | United States Department of Agriculture Nutrient Database |
| Special needs family friendly fun | Enhancing the quality and fun of family life with special needs. |