Past Events
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2018 – Palynziq Educational Event with Dr. Burton
Come learn about PALYNZIQ™ (pegvaliase-pqpz) Injection, a new way to take control of your PKU. Meet with other adults in the PKU community and hear from a clinical expert about PALYNZIQ, a new therapy for adults with PKU. This event is intended for adults 18 years and older, who have blood Phe levels greater than 600 ul/L (10mg/dl). Download the full event flyer
Find out more »2018 Annual Meeting
Join us on Saturday, November 10th, for our the annual PKU Organization of Illinois Conference, where we will have keynote speaker Dr. Durrer-Deming, as she presents her latest study on a probiotic which would essentially lower serum PHE levels. There will be breakout groups that focus on the various age groups, and workshops to teach children how to track and measure PHE. Our overall theme will focus on PKU through adulthood and getting children set up for success. Click here…
Find out more »2018 Cookie Exchange
Please join us at Kimberly and Josh Anderson's home for the 2018 Cookie exchange! Bring 2 dozen cookies with PHE count and some Tupperware or a bag to take some home with you! This is always a great event, an no charge to those would like to attend. We look forward to seeing you there! Register Now!
Find out more »2019 New Parent Cafe
A free, fun event for families with young children! Meet new friends in the PKU and Allied Disorders community. Speak with vendors and clinics. A low protein brunch assortment will be provided. Plus - take home some free samples and tools for managing you and your loved one's PKU. Have PKU foods your child has tried but won't eat? Don't throw it away! Bring your items to the New Parent Cafe and swap with foods from another family! Must not…
Find out more »2019 Family Fun Day – Central/South
Please join us at McGraw Park in Bloomington for the first Family Fun Day in Central Illinois! This is a pot luck picnic that's free to attend, all you need to do is sign up to bring a dish! Enjoy all the park has to offer and a pot luck lunch. We look forward to having you there! Click here to register. Are you in northern Illinois? Check out our other event on 6/23 in Geneva!
Find out more »2019 Family Fun Day – North
Join us for the 2019 Family Fun Day at Wheeler Park in Geneva, IL! This is a free pot luck picnic for you to meet others in the are with PKU, enjoy the park and try some different food! All we ask is you bring a dish to share. Click here to register. Are you in central or southern Illinois? Check out our other event on 6/22 in Bloomington!
Find out more »2019 Family Camp
Join us July 19-21 for our annual Family Camp at Great Oaks in Lacon, IL. Activities include: Archery Swimming Disc Golf Canoeing Paddle boats Fishing High Ropes Course Basketball Sand Volleyball Gagaball Hiking Carpet Ball Carpet Ball Camp Fires Field Games Register now!
Find out more »2019 Silent Auction
Join us at Enoteca Roma for our premier annual fundraising event! Plan on an evening of great wine and delectable PKU & non-PKU food alike. Grab a glass of your favorite red or white and start bidding at our silent auction benefiting PKU and Allied Disorders. $75/person, $125/couple. Register here! Wine included in registration cost - a full cash bar will also be available.
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