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July 2018

2018 Family Camp

July 20 - July 22
Great Oaks Campground, 1380 CR 900 N
Lacon, IL 61540 United States
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2018_family_camp

Our 2018 Family Camp will take place July 20th to the 22nd at Great Oaks Campground in Lacon, IL. Register now!   Schedule Friday, July 20th 4pm - Check in 5pm - Tie-dye shirts (We will have shirts, but bring anything else you would like to Tie Dye!) 6pm - Dinner: Potluck (We will have hot dogs and Not-Dogs. Bring your favorite side dish!) 8pm - Campfire ( s’mores and snacks), Glo-stick freeze tag Saturday, July 21st 9am -  Breakfast 10am -…

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August 2018

2018 Low-Protein Cooking Workshop w/Vitaflo

August 11 @ 2:00 pm - 4:00 pm
The Chopping Block, 222 West Merchandise Mart Plaza #107
Chicago, IL 60654 United States
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Join Vitaflo and Chef Neil for an interactive low protein cooking workshop.

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September 2018

2018 TopGolf Fundraiser

September 16 @ 3:30 pm - 6:30 pm
TopGolf Naperville, 3211 Odyssey Ct.
Naperville, IL 60563 United States
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2018 TopGolf

On September 16th, swing on by "fore" a fundrasier at TopGolf Naperville! Food and golf time will be provided as part of the registration - $100/person, $175/couple, $300/foursome. Click here to register today!

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2018 – BioMarin Event at Goebbert’s Pumpkin Patch

September 29 @ 10:00 am - 1:00 pm
Goebbert’s Pumpkin Patch, 42W813 Reinking Rd
Pingree Grove, IL, IL 60140 United States
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2018 Biomarin Event Flyer

Join us for a day to learn about managing your PKU for life and to meet other people in the PKU community. Learn about PKU, explore a local farm, and have some fun with other PKUers.   Download the full event flyer

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October 2018

2018 Wine Tasting

October 13 @ 5:30 pm - 9:00 pm
Enoteca Roma, 2146 W Division Street
Chicago, IL 60622 United States
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$65
2018 Annual Wine Tasting Invite

On October 13th, grab a glass of your favorite red or white and start bidding at a silent auction benefiting PKU!   Register here to attend the Wine Tasting (ends 10/9/2018) Silent Auction Items List and Registration

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2018 – Palynziq Educational Event with Dr. Burton

October 27 @ 9:00 am - 12:00 pm
Notre Dame Stadium, 2010 Moose Krause Cir
Notre Dame, IN 46556 United States
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2018_Palynziq_Event_flyer

Come learn about PALYNZIQ™ (pegvaliase-pqpz) Injection, a new way to take control of your PKU. Meet with other adults in the PKU community and hear from a clinical expert about PALYNZIQ, a new therapy for adults with PKU. This event is intended for adults 18 years and older, who have blood Phe levels greater than 600 ul/L (10mg/dl).   Download the full event flyer

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November 2018

2018 Annual Meeting

November 10
Crowne Plaza Chicago O’Hare, 5440 N. River Road
Rosemont, IL 60585 United States
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2018 Annual Meeting

Join us on Saturday, November 10th, for our the annual PKU Organization of Illinois Conference, where we will have keynote speaker Dr. Durrer-Deming, as she presents her latest study on a probiotic which would essentially lower serum PHE levels. There will be breakout groups that focus on the various age groups, and workshops to teach children how to track and measure PHE. Our overall theme will focus on PKU through adulthood and getting children set up for success. Click here…

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December 2018

2018 Cookie Exchange

December 9 @ 3:30 pm - 5:30 pm
The Anderson’s Home Aurora, IL 60506

Please join us at Kimberly and Josh Anderson's home for the 2018 Cookie exchange!  Bring 2 dozen cookies with PHE count and some Tupperware or a bag to take some home with you!  This is always a great event, an no charge to those would like to attend.  We look forward to seeing you there!   Register Now!

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