Past Events
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2018 Family Camp
Our 2018 Family Camp will take place July 20th to the 22nd at Great Oaks Campground in Lacon, IL. Register now! Schedule Friday, July 20th 4pm - Check in 5pm - Tie-dye shirts (We will have shirts, but bring anything else you would like to Tie Dye!) 6pm - Dinner: Potluck (We will have hot dogs and Not-Dogs. Bring your favorite side dish!) 8pm - Campfire ( s’mores and snacks), Glo-stick freeze tag Saturday, July 21st 9am - Breakfast 10am -…
Find out more »2018 Low-Protein Cooking Workshop w/Vitaflo
Join Vitaflo and Chef Neil for an interactive low protein cooking workshop.
Find out more »2018 TopGolf Fundraiser
On September 16th, swing on by "fore" a fundrasier at TopGolf Naperville! Food and golf time will be provided as part of the registration - $100/person, $175/couple, $300/foursome. Click here to register today!
Find out more »2018 – BioMarin Event at Goebbert’s Pumpkin Patch
Join us for a day to learn about managing your PKU for life and to meet other people in the PKU community. Learn about PKU, explore a local farm, and have some fun with other PKUers. Download the full event flyer
Find out more »2018 Wine Tasting
On October 13th, grab a glass of your favorite red or white and start bidding at a silent auction benefiting PKU! Register here to attend the Wine Tasting (ends 10/9/2018) Silent Auction Items List and Registration
Find out more »2018 – Palynziq Educational Event with Dr. Burton
Come learn about PALYNZIQ™ (pegvaliase-pqpz) Injection, a new way to take control of your PKU. Meet with other adults in the PKU community and hear from a clinical expert about PALYNZIQ, a new therapy for adults with PKU. This event is intended for adults 18 years and older, who have blood Phe levels greater than 600 ul/L (10mg/dl). Download the full event flyer
Find out more »2018 Annual Meeting
Join us on Saturday, November 10th, for our the annual PKU Organization of Illinois Conference, where we will have keynote speaker Dr. Durrer-Deming, as she presents her latest study on a probiotic which would essentially lower serum PHE levels. There will be breakout groups that focus on the various age groups, and workshops to teach children how to track and measure PHE. Our overall theme will focus on PKU through adulthood and getting children set up for success. Click here…
Find out more »2018 Cookie Exchange
Please join us at Kimberly and Josh Anderson's home for the 2018 Cookie exchange! Bring 2 dozen cookies with PHE count and some Tupperware or a bag to take some home with you! This is always a great event, an no charge to those would like to attend. We look forward to seeing you there! Register Now!
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