Dr. Shawn Christ, “PKU and the Brain”


Join us for our online event with Dr. Shawn Christ! A meeting link will be sent, via email, to those who register. Register now. Sponsored by Galen-Pharma

2021 Low Protein Community Reunion

Blackberry Farm 100 South Barnes Road, Aurora, IL

Join us for a chance to reunite the low protein community in the physical world at Blackberry Farm! Have some outdoor fun with other low protein families, learn about low protein products, and enjoy a low-protein picnic-style lunch that will be provided. There is a small $7/person registration fee to cover the cost of admission to ... Read more


Nutricia – PhenylAde GMP Ultra Mixology Event


CALLING ALL ADULTS WITH PKU! Let’s get together for a fun meeting to connect with one another, share diet tips, struggles and learn about an ULTRA exciting PKU formula made for adults with PKU by adults with PKU. The 45 minutes event will start with a fun non-alcoholic mixology demo featuring an award winning, professional ... Read more


2022 New Parent Cafe

Alive Center 500 W 5th Ave, Naperville, IL

For parents, relatives, and caregivers of children ages 0–5 that require a low protein diet. Come network and learn from other families! A chance for new parents to hear from people who have been where they are, to meet with vendors who support the PKU and allied disorder community, and to ask questions to experts. ... Read more

2022 Family Fun Day

Blackberry Farm 100 South Barnes Road, Aurora, IL

Join us for some outdoor fun at Blackberry Farm! Meet other low-pro families, learn about low-protein products, and enjoy the opposite of a protein-packed lunch -- picnic-style! Sign me up! There is a small $10/person registration fee, to cover the cost of admission to Blackberry Farm.


2022 Wine Tasting and Silent Auction

Enoteca Roma 2146 W Division Street, Chicago, IL

Please join us for a night of food (PKU and non-PKU), wine, and a silent auction to raise money for the PKU Organization of Illinois! Proceeds to benefit scholarships, research, and those in need. Tickets: $50 for one $75 for two   Purchase Tickets


2022 Annual Meeting

Crowne Plaza Chicago O'Hare 5440 N. River Road, Rosemont, IL

"Welcome Back" Keynote from Psychiatrist Deborah Bilder, MD on Mental Health and PKU Learn the latest on Home PHE monitoring from IVD Solutions Clinic updates Research updates from Dr. Burton Lifetime achievement presentations for Dr. Hoganson and Doug Hart Kids 5-12 session Fantastic lo-protein foods throughout Record number of vendor sponsors PKU and Allied disorder ... Read more