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September 2018

2018 – BioMarin Event at Goebbert’s Pumpkin Patch

September 29 @ 10:00 am - 1:00 pm
Goebbert’s Pumpkin Patch, 42W813 Reinking Rd
Pingree Grove, IL, IL 60140 United States
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2018 Biomarin Event Flyer

Join us for a day to learn about managing your PKU for life and to meet other people in the PKU community. Learn about PKU, explore a local farm, and have some fun with other PKUers.   Download the full event flyer

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October 2018

2018 Wine Tasting

October 13 @ 5:30 pm - 9:00 pm
Enoteca Roma, 2146 W Division Street
Chicago, IL 60622 United States
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$65
2018 Annual Wine Tasting Invite

On October 13th, grab a glass of your favorite red or white and start bidding at a silent auction benefiting PKU!   Registration is now open!

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2018 – Palynziq Educational Event with Dr. Burton

October 27 @ 9:00 am - 12:00 pm
Notre Dame Stadium, 2010 Moose Krause Cir
Notre Dame, IN 46556 United States
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2018_Palynziq_Event_flyer

Come learn about PALYNZIQ™ (pegvaliase-pqpz) Injection, a new way to take control of your PKU. Meet with other adults in the PKU community and hear from a clinical expert about PALYNZIQ, a new therapy for adults with PKU. This event is intended for adults 18 years and older, who have blood Phe levels greater than 600 ul/L (10mg/dl).   Download the full event flyer

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November 2018

2018 Annual Meeting

November 10
Crowne Plaza Chicago O’Hare, 5440 N. River Road
Rosemont, IL 60585 United States
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2018 Annual Meeting

Join us on Saturday, November 10th, for our the annual PKU Organization of Illinois Conference, where we will have keynote speaker Dr. Durrer-Deming, as she presents her latest study on a probiotic which would essentially lower serum PHE levels. There will be breakout groups that focus on the various age groups, and workshops to teach children how to track and measure PHE. Our overall theme will focus on PKU through adulthood and getting children set up for success.

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