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2018 Annual Meeting

November 10

2018 Annual Meeting

Join us on Saturday, November 10th, for our the annual PKU Organization of Illinois Conference, where we will have keynote speaker Dr. Durrer-Deming, as she presents her latest study on a probiotic which would essentially lower serum PHE levels.

There will be breakout groups that focus on the various age groups, and workshops to teach children how to track and measure PHE.

Our overall theme will focus on PKU through adulthood and getting children set up for success.

Click here to register.

 

SCHEDULE OF EVENTS

8:15 – Registration/Breakfast

Concourse A

8:50 – Children’s program starts

Room: Love A (Downstairs)

9:00 – Meeting starts

Board introductions

Event Recap

NPKUA update

Room: O’Hare 1

10:00 –11:00 –  Keynote speaker

Dr. Katherine Durrer

11:00 – 11:15 – Mid morning break

11:15 – 12:00 – Palynziq lecture –

Heather Bausell Luries RD, Erika Vucko, Lurie’s APN

12:00-12:30 – Vendor Break

Room: Concourse A

12:30- 1:30 – Lunch

Room: O’Hare 2

1:30 – 2:30pm – Breakouts

  1. Infancy- “Introduction to Solids”

Amanda, Katie  (Lurie RDs)

Room: Dulles

  1. Elementary/Jr High

Grant, Pam, Krista (UIC RD)

Room: La Guardia

  1. High School/College

Andrea (Genetics Counselor), Shannon (UIC RD), Sean

Room: Haneda

  1. Adulthood/Family Planning

Elena, Soo, Mitzie Grant (Neuropsychologist), Heather (Lurie RD)

Room: O’Hare 1

2:30 – 2:45pm –  Afternoon Break

Room: Concourse A

2:45pm – 3:00pm– Kid’s return

Room: O’Hare 1

3:00 – 3:30 Measuring Demo

Room: O’Hare 1

3:30 – Raffle, Scholarship winners

Room: O’Hare 1

4:00 – End conference

 

Children’s Program

Lead by Brittany Smith (Lurie’s Child Life Specialist)

Volunteers: Carolyn Ries, Roxanne Del Rosario

 

9:00 – Ice breakers

9:30 – 10:30am – PKU and You

Exchange ideas/tools for school/friends

How do you help take care of yourself?

Blood PHE

10:30-11- Goal making discussion

What are milestones?

What would you like to accomplish?

11-11:30 –  (develop stones)

11:30-12 – Genetic Make-Up

12-12:30 – Time for games.

12:30-1:30 Lunch

1:30-2 Vendors

2-2:30 Cookies with Margaret

2:30-2:45 – practice presentation

2:45-3 Presentation

 

Details

Date:
November 10

Venue

Crowne Plaza Chicago O’Hare
5440 N. River Road
Rosemont, IL 60585 United States
+ Google Map
Phone:
847-671-6350
Website:
https://www.crowneplazaohare.com/