International PKU Teen and Adult Conference

August 15 and 16, 2008
(Plan on arriving the night of the 14th)
Embassy Suites Chicago O'Hare
Rosemont, IL

A small group of PKU teens and adults with PKU from the US, Canada, and the UK have
acted as a steering committee to organize the meeting with the strong support and
advice of Susan Waisbren, Clincal Psychologist for  the metabolic programs at Boston Children's Hospital, and the  Transition to Adult Care National Workgroup. The  conference is open to PKU teens age 13+ and PKU Adults, parents of PKU  teens/adults age 13+, spouses, and metabolic health care professionals, etc. Topics for the conference include, but are not limited to:maternal PKU, daily dietary management, nutrition  management issues for adult PKU, transition to adult care,  adult clinics, insurance, and current research. There will also be  time to visit with vendors and free time in the evenings to relax, socialize and have fun!

UPDATE: Registration is now open!

On behalf of the Planning Committee for the International PKU Teen and Adult Conference, I am pleased to let you know the conference registration form and the agenda are complete and we are now opening up the conference for registration.

The conference is open to people with PKU age 13 and older, their parents/spouses, metabolic healthcare professionals, etc. and is scheduled for Friday, August 15 and Saturday, August 16th 2008 at the Embassy Suites Chicago O'Hare.  Additionally, weather permitting, an informal trip to The 50th Annual Chicago Air and Water Show downtown is being planned for Sunday, August 17th.

A link to the pdf files for the registration form and the conference agenda is available on the main page of the website pkuworldlink.org.  Many of the details regarding the conference are on these pdf's but please feel free to email pkuadult@aol.com with questions.

PKU Clinics and Support Groups: Please pass this information along and make as many copies of the conference forms as you need.  If you require multiple copies sent to you please email your postal address and the number of copies you are requesting.

We hope to see you there!

Sarah Foster
pkuadult@aol.com
www/pkuworldlink.org